Tag Archives: lyme

Tempting fate with my superfluous organs, bones etc.

Tempting fate with my superfluous organs, bones etc.

So after several years of dealing with intermittent numbness, tingling and pain in my fingers, hands, arms – none of which is related to Diabetic Neuropathy my endocrinologist has assured me – it looks like we’ve finally figured out the issue.  In addition to those symptoms, I’ve had off and on terrible neck and pack pain, as well as chest pain and difficulty breathing.  Oh, and my chest pops – like a really loud, unsettling “POP!” several times a day – sometimes painful, sometimes relieving to the chest pressure.

With the Lyme, Erlichia, Bartonella and Babesia issues I’ve sort of overlooked any other crazy problems being attributed to anything else, but even when the majority of my symptoms are in remission these still persist.

I’ve had so many EKG’s since 2008 they’ve (thankfully) ruled out any type of heart issue, but couldn’t figure out what’s causing the chest/breathing problems.  I’ve spent the last 3 months in physical therapy 3x a week trying to help the pain, and I’m barely sleeping but nothing has helped.  Finally they referred me to a specialist and I’ve been diagnosed with bilateral Thoracic Outlet Syndrome.  This was after MRI’s, nerve tests, etc, etc, etc.  I was relieved to have a diagnosis, but not to hear that since the PT isn’t working the only real option is surgery.

What type of surgery you ask?  Removing ribs.  Yup, that’s right.  All these years I’ve joked that if you don’t need it, I’ve surely had it removed.

Things I was born with but no longer have include:

  • tonsils
  • adenoids
  • appendix
  • gallbladder

I technically still have my pancreas, but since it’s been out of commission since 1988 I would assume it’s a shriveled down next to nothing by now, but I’ll leave it off since it wasn’t surgically revoked from my body and I gotta take what I can get at this point.

Let’s put it this way, human traffickers specializing in black market organ sales would be amazingly disappointed if they should by chance try to kidnap me for profit.

I’ve finally gone ahead and scheduled my first rib removal (left side bothers me more so we’ll start there) for the beginning of June.  Definitely not looking forward to it, but hoping it winds up being worth the pain in the long run because I just can’t function like this much longer.  Also, I will not be joking about the coveted organs or bones that I still have – they’re all mine.

What we’ve learned about taxes

What we’ve learned about taxes

It’s April 15, 2012.  Tax Day, and it also happens to be a Sunday so everyone got an extension to Tuesday the 17th.

Tax Day

I’m proud to announce that not only are our taxes done but we’ve already gotten our state refund back!  That’s right, if you’d have told me 5 years ago that we’d be sitting here with a fat plump refund in our account ON tax day, I’d have called you a crackhead.  The first 2 years we were married, we bolted into H & R Block, pretty much ON April 15th to get our taxes did, but I never felt very confident that the “Tax Advisors” we met with knew much more than us.  Especially in 2008, when we were told that we didn’t really need to worry about deductions because most people didn’t qualify… that was for 2007 when my medical alone was about $27k out-of-pocket.  Yup, between the Lyme, Diabetes (mostly glucose strips, insulin, insulin pump & supplies) and the infamous kickball incident of ’07 it was an especially expensive year to keep me alive. 

Anyway, it was then I decided I would begin doing our taxes & have been doing them ever since – with about the same results as the “Tax Advisors”.  This year, however, we decided we were going to take our chances and spend the big bucks ($450, which I’ll admit, at the time I had a hard time with since for $60 I could buy the software and a little over $100 to see the “advisors”) for a real life tax accountant to do our taxes.  It was money very well spent, we actually got over 3x what we’ve gotten in the past.  It was unreal – and there are crazy deductions we qualified for that I would’ve never in a million years known about, and didn’t claim any of the ones you would think (medical).  Ah-maz-ing.  Take it from me, throw down the extra money and see a professional.  The guy we saw was awesome, he even advised us on how to do things this year to maximize our refund next year.

We’ve already scheduled our appointment for next year.